Spiral Galaxy

NEW ON Our Mother’s Voice LINKS

 The Founder and President of Our Mother’s Voice discusses the history and goals of the organization on the radio!
 For the audio podcast:http://leojansen.net/WLMAMedia/Podcast/Kathy%20Bradley%2001-06-15.mp3

For a video version of the interview: https://www.youtube.com/watch?v=DeTABWD798c&feature=youtu.be


The Center for Medicare and Medicaid Services has released updated federal regulations governing nursing facilities, which will be phased in over a 3-year period.   The new Revised Regulations for Long-Term Care Facilities (nursing homes) are now published as a single document available online:
https://www.ecfr.gov/cgi-bin/text-idx?SID=f64b6edcc2b2ee52bf5de8e19a340569&mc=true&node=sp42.5.483.b&rgn=div6#se42.5.483_140

The Interpretive Guidance for surveyors, which further defines the intent of the new regulations, is available here:
http://theconsumervoice.org/uploads/files/issues/SC17-36.03.Appendix_PP_with_Final_IGs.pdf

For a version of the Guidance with a “clickable” Table of Contents to enable the reader to “jump” to any section rather than searching the entire 700-page document:
1.      Click here to download the Revised Interpretive Guidelines with the clickable Table of Contents.
2.      Scroll down to page 2 of the document.
3.      Move your mouse over the section you want to review (e.g. "Resident Rights," "Quality of Care," etc.).  You should see your pointer mouse turn into a hand with a finger.
4.      Click on the section you've selected.  The document should immediately jump to that section of the Interpretive Guidelines. 

The National Consumer Voice is publishing a series of informative briefs highlighting some of the changes, the first of which can be accessed here:
http://theconsumervoice.org/uploads/files/actions-and-news-updates/A-guide-to-Revised-Nursing-Facility-Regulations.pdf

For those who want a more in-depth review of the changes in the regulations, the following are two multi-page summaries of key changes:
http://theconsumervoice.org/uploads/files/issues/summary-of-key-changes-effective-phase-1-final.pdf
http://theconsumervoice.org/uploads/files/issues/summary-of-key-changes-effective-phase-1-part-2-FINAL.pdf

and for a fact sheet that explains some of the reasons these revisions are vital to nursing home residents (NOTE: You will have to copy and paste this address into your browser. This hyperlink would not activate):
http://theconsumervoice.org/uploads/files/issues/Why-the-Recently-Revised-Nursing-Home-Regulations-Are-Vital-for-Nursing-Home-Residents_(1).pdf

More fact sheets on the new revised nursing home regulations from the National Consumer Voice for Quality Long-Term Care:
       on transfer & discharge:
http://www.justiceinaging.org/wp-content/uploads/2017/01/Revised-Nursing-Facility-Regulations_Involuntary-Transfer-and-Discharge.pdf
      on unnecessary drugs and antipsychotic medications:
http://www.justiceinaging.org/wp-content/uploads/2017/02/Revised-Nursing-Facility-Regulations_Unnecessary-Drugs-and-Antipsychotic-Medications.pdf
      on admission: http://theconsumervoice.org/uploads/files/issues/Revised_Nursing_Facility_Regulations_Admission.pdf
      on assessment, care planning, and discharge planning:
http://www.justiceinaging.org/wp-content/uploads/2016/12/A-Guide-to-the-Revised-Nursing-Facility-Regulations.pdf
      on involuntary transfer and discharge:
http://theconsumervoice.org/uploads/files/issues/Revised_Nursing_Facility_Regulations_Involuntary_Transfer_and_Discharge.pdf
      on nursing services:
http://theconsumervoice.org/uploads/files/issues/Revised-Nursing-Facility-Regulations_Nursing_Services.pdf
      on visitation rights:
http://theconsumervoice.org/uploads/files/issues/Revised_Nursing_Facility_Regulations_Visitation_Rights.pdf
      on specialized rehabilitation services:
http://theconsumervoice.org/uploads/files/issues/Revised_Nursing_Facility_Regulations_Rehabilitation_Services.pdf
      on Grievances and Resident or Family Councils:
http://theconsumervoice.org/uploads/files/issues/Revised_Nursing_Facility_Regulations_Grievances_and_Resident_or_Family_Councils.pdf
      on Return to Facility After Hospitalization:
http://theconsumervoice.org/uploads/files/issues/Revised_Nursing_Facility_Regulations_Return_to_Facility_After_Hospitalization.pdf
      on Quality of Care:
http://theconsumervoice.org/uploads/files/issues/Revised_Nursing_Facility_Regulations_Quality_of_Care.pdf

 Often families are told their loved one cannot be served in a community-based setting because of wandering or other challenging behaviors.  The Center for Medicare and Medicaid services has published guidance for providers instructing them how they are to meet these needs within the federal regulations:
https://www.medicaid.gov/federal-policy-guidance/downloads/faq121516.pdf

For a guide to understanding this new rule and how it impacts care and services in adult day settings, from the Consumer Voice and Justice in Aging:
http://www.justiceinaging.org/wp-content/uploads/2016/10/Medicaids-New-Rule-to-Promote-Independence.pdf

For information on how you can advocate for person-centered services in adult day settings who are governed by these rules, from the Consumer Voice and Justice in Aging:
http://www.justiceinaging.org/wp-content/uploads/2016/10/HCBS-Regs-and-Adult-Day-Centers.pdf

Resident-on Resident Abuse is often cited as a reason to discharge an “aggressive” resident.  For a guide to successfully addressing these behaviors, and avoiding the threat of involuntary discharge of the “aggressive” resident, the National Center on Elder Abuse has published this brief:
http://eldermistreatment.usc.edu/wp-content/uploads/2016/10/RR-Aggression-Research-Practice.pdf

for a new report on the impact of Alzheimer’s disease:
http://www.alz.org/facts/

 for links to various informational resources for caregivers of loved ones with dementia:
http://ltcombudsman.org/issues/dementia-care 

for an overview of the concepts of individualized quality care:
http://theconsumervoice.org/uploads/files/issues/basics-of-individualized-quality-care-factsheet-final.pdf

for information about the Center for Medicare & Medicaid Services (CMS) initiative supporting and encouraging facilities to implement person and family involvement in care planning:
https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/QualityInitiativesGenInfo/Person-and-Family-Engagement.html 

for a fact sheet detailing the rights of Resident Councils in nursing homes, from the National Consumer Voice on Quality Long-Term Care:
http://theconsumervoice.org/uploads/files/long-term-care-recipient/Resident_Council_Rights_Fact_Sheet.pdf


For a guest article on senior wellness tips, click here.


Click here for more Online Resources

Quick Links

There is a great wealth of information available "out there" that many are not aware exists.

We have not tried to be exhaustive in discussing these topics, or including all the issues that will arise when families face the life changes of placing a loved one in a nursing home. And for many families, providing care at home is the best option – a decision which also brings challenges. These links to the resources of others will help to further equip families to become strong advocates not only for their own family members but also for systems change in the field of long-term care, whether that care takes place in a nursing facility or with assistance in the home.


We encourage you to explore these resources; and if you find others that we haven’t included, please let us know at contact@ourmothersvoice.org so that we can add them to our compendium.

Mixed Media on Canvas by Carol J. Hay