Mixed Media on Canvas by Carol J. Hay
The Founder and President of Our Mother’s Voice discusses the history and goals of the organization on the radio!
For the audio podcast:
For a video version of the interview:
Our Mother’s Voice CEO discusses how Quality of Life changes when caregivers begin to understand the communicative intent of behavior in people with dementia, in the video presentation “Behavior IS Communication! – My Mother’s Story”: https://vimeo.com/462311247
Our Founder and CEO presented testimony to the National Academies of Sciences, Engineering and Medicine’s Committee on the Quality of Care in Nursing Homes, which is tasked with examining “how our nation delivers, regulates, finances and measures quality of nursing home care, including the long-standing challenges brought to light by the COVID-19 pandemic.” Her moving remarks begin at 3:26 of this recording:
and her participation in the Q&A at 1:09:50.
A MESSAGE FROM OUR CEO:
The COVID-19 pandemic is decimating the long-term care population across the country. Because the situation is so fluid, Our Mother’s Voice refers all inquiries for resources on this emerging crisis to the National Consumer Voice for Quality Long-Term Care for the most up-to-date information as well as information chronicling the brief and alarming history around this crisis.
The Consumer Voice has a Podcast series focused on “Pursuing Quality Long-Term Care”, available in two formats:
and directly from the Consumer Voice web site:
We could all use an uplifting story these days. This is one: an old jazz musician with dementia reunited with his band mates and his music! A testament to the power of music and memory:
Oral Health America and their resources are now owned by Authority Dental, which features pages dedicated to oral care for seniors:
YouTube hosts many instructional videos, both stand-alone and in series, for providing oral care for those with dementia:
Justice in Aging has updated its essential guide, 25 Common Nursing Home Problems – & How to Resolve Them. The revised guide includes, among other things, COVID-19 specific information, 2021 Medicare eligibility standards, and advice on how to refuse arbitration agreements under a recently revised federal regulation. Even supposedly “good” nursing homes often follow standard procedures that violate federal law and put residents at risk. This updated version of the guide offers new information on resident and family rights regarding visitation during the pandemic, waivers and coverage flexibilities put in place during the pandemic, and updates relating to Medicare, arbitration, and other issues. The 25 problems identified in the guide are common across the country and in all types of nursing homes. The guide gives residents, family members, friends, and other advocates the tools they need to identify and solve the problems residents most frequently face.
Click the button below for links to more resources:
We have not tried to be exhaustive in discussing these topics, or including all the issues that will arise when families face the life changes of placing a loved one in a nursing home. And for many families, providing care at home is the best option – a decision which also brings challenges. These links to the resources of others will help to further equip families to become strong advocates not only for their own family members but also for systems change in the field of long-term care, whether that care takes place in a nursing facility or with assistance in the home.
We encourage you to explore these resources; and if you find others that we haven’t included, please let us know at firstname.lastname@example.org so that we can add them to our compendium.
Copyright © Our Mothers Voice All Rights Reserved
STATEMENT OF PURPOSE AND DISCLAIMER:
The contents of the information shared at this site are largely based upon the Code of Federal Regulations 42CFR483 Subpart B, Centers forMedicare & Medicaid Services, Requirements for Long-Term Care Facilities, standards for nursing homes. Although not every Nursing Facility accepts Medicare or Medicaid residents, the standard of care represented in the discussion here should be the standard families look for when choosing a facility for their loved one. Our Mother’s Voice reminds the family to remain vigilant to ensure that those rights and quality of care and services remain in place, for those whose voice has been silenced by age, incapacity, or dementia. Our Mother’s Voice does not advise, but informs, so that families can then make decisions of their own. If you require advice, we recommend that you seek the appropriate advisory professional. Our Mother's Voice is a trademark owned by the founders of the organization. All rights reserved. All artwork taken from original paintings by Carol J Hay, our mother, copyrighted; used with permission. Our Mother’s Voice is a 501(c)3 organization established in 2010 with a volunteer Board of Directors and a volunteer CEO as our only staff. All services are free of charge. Our funding comes entirely from donations made by individuals.
Our Mothers Voice