Mixed Media on Canvas by Carol J. Hay
We have not tried to be exhaustive in discussing these topics, or including all the issues that will arise when families face the life changes of placing a loved one in a nursing home. And for many families, providing care at home is the best option – a decision which also brings challenges. These links to the resources of others will help to further equip families to become strong advocates not only for their own family members but also for systems change in the field of long-term care, whether that care takes place in a nursing facility or with assistance in the home.
We encourage you to explore these resources; and if you find others that we haven’t included, please let us know at email@example.com so that we can add them to our compendium.
The Founder and President of Our Mother’s Voice discusses the history and goals of the organization on the radio!
For the audio podcast:
For a video version of the interview:
Newly-published 2019 Alzheimer’s Disease Facts and Figures infographic:
For a guide book containing best practices for preventing harm to residents in nursing homes from a variety of causes:
The Consumer Voice has several resources that include important information about abuse prevention, abuse reporting, and protection of individual rights:
And this guide defining abuse, neglect, and misappropriation of property:
Center for Medicare Advocacy has crafted resources advocates can use to educate providers, contractors, and adjudicators who are not versed in the federal court decision Jimmo v Sebelius, which made the so-called “improvement standard” invalid in determining the appropriateness of physical, occupational, speech, and other special therapies:
Kaiser Health News has published a report detailing the harm caused by absence of consistent, strong regulations governing assisted living for people with dementia:
To learn how the states are addressing palliative care, this page links to the full report from the National Academy for State Health Policy, and to state-by-state information:
The Center for Medicare and Medicaid Services has released a “Change Package” resource of best practices to prevent harm from all causes in nursing homes. The project explanation and content of the resource are described here:
and the resource can be downloaded here:
This New York Times article from January 2018 illustrates a growing trend in a get-rich scheme in which owners of nursing homes also have ownership interest in numerous support services companies (therapy, meal service, etc.) with whom they contract – and overpay – for these support services, thereby reaping large profits while underfunding the nursing homes.
The Center for Medicare Advocacy explains that home health aide services are often misrepresented and under-provided by home health agencies:
and offers a case study as an example of how to advocate for needed home health aide services:
Copyright © Our Mothers Voice All Rights Reserved
Our Mothers Voice
STATEMENT OF PURPOSE AND DISCLAIMER:
The contents of the information shared at this site are largely based upon the Code of Federal Regulations 42CFR483 Subpart B, Centers forMedicare & Medicaid Services, Requirements for Long-Term Care Facilities, standards for nursing homes. Although not every Nursing Facility accepts Medicare or Medicaid residents, the standard of care represented in the discussion here should be the standard families look for when choosing a facility for their loved one. Our Mother’s Voice reminds the family to remain vigilant to ensure that those rights and quality of care and services remain in place, for those whose voice has been silenced by age, incapacity, or dementia. Our Mother’s Voice does not advise, but informs, so that families can then make decisions of their own. If you require advice, we recommend that you seek the appropriate advisory professional. Our Mother's Voice is a trademark owned by the founders of the organization. All rights reserved. All artwork taken from original paintings by Carol J Hay, our mother, copyrighted; used with permission.